Tag: suicide prevention

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Baking a Cake

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Tonight I am baking a cake… and the irony doesn’t escape me.

You see, tonight is my brother’s birthday. He’d be 41. He died by suicide at the age of 17, 23 years ago, when I was just 14. Long ago, I was dubbed the “family cake maker”.

This cake should be for him, but it isn’t.

Tonight I am baking a cake for my son’s drama club. Once it has baked and cooled, I’ll crumble it and with my hands, mix in some cheap, store-bought icing and turn it into Wizard of Oz themed cake pops- my voluntary contribution to the drama club’s concession stand on performance night.

A cake… baked and then crumbled… like my family. Once again, the irony doesn’t escape me.

There will be no writing in icing, no birthday candles and no singing tonight.

And even though as a perinatal grief worker, “baking a cake and singing ‘Happy Birthday’ ” is one of the many suggestions I make to families who have lost a child and find themselves in search of ideas, when their baby’s birthday rolls around and they are not in arms to help blow out the candles… 23 years later, I still can’t bring myself to do it. And he wasn’t even my child.

A single candle I’ll light and memorializing I will do, but it won’t be blanketed in sugary icing and my words won’t be recorded with mirth.

Tonight I am baking a cake, for a birthday that is no longer celebrated, to be used for a performance that will not be attended by my children’s uncle. An uncle in fact, they’ve never met.

Life is full of irony… and misfortune. I don’t ever expect to rid the world of either. But it can be rid of unwarranted and preventable loss if we open our eyes and start to care. If we pay attention to the people who have withdrawn. If we notice who is just a little quieter, a little more to themselves, a little less engaged. We can save lives if we accept that the world is hard enough without judgement and criticism; and we deem mental health as legitimate and worthy of treatment as physical health.

I have not made my brother’s story a secret. And since I have begun telling it, I can no longer count on two hands, the number of personal stories of suicide that have been brought to me by people that I love. And while I love that I am a safe place to land (and hope always to be so), I am really fucking tired of attending funerals that didn’t have to be.

Tonight I am baking a cake and my tears have replaced my singing.

Tonight, like with many life events, I find myself talking to my brother a lot- telling him all that’s happening, all that he’s missed since he’s been gone. At my wedding, my graduation… my children’s births and life events… it’s like reaching back into time to tell him “I’m a wife now… a nurse… a Momma”. And it makes me so very sad that he isn’t here to see it.

Imagine your life cut short at 17 and all of the wonderful events that you wouldn’t have ever experienced. It doesn’t matter how old you are when you die prematurely, there is always unresolved longing by those left behind.

Depression robs you of the ability to see past your current state. Every day activities are exhausting, goals feel insurmountable and the future seems unreachable. Telling someone who is depressed to “Snap out of it”, “Get over it”, or “Pull themselves up by their boot-straps”, is like telling someone who is ravishingly hungry that there are better food choices than what is presented in the vending machine in front of them and to just “hold off”. If you want them to eat a salad instead of pop tarts, you’re gonna have to hand them the salad! Telling them that the salad exists, isn’t helpful in that moment, if it isn’t a tangible option with support in place.

People who suffer from depression or a sudden insurmountable life stressor, need tools, not ideas. They need someone to say, “I am here to listen, not to judge and we are going to do this together.” They need constant support.

I refuse to allow my brother’s death… or any of the other suicides close to the persons I love, to be in vain. And I am asking you to do the same. If you struggle with making judgement against people, find a way to understand. Help me fight for better mental health services. And if all else fails, just be kind.

And for those of you who find the idea of another tomorrow overwhelming… my heart and my home are always open. I know you can’t see it now, but there is a beautiful purpose for your existence… hold out for it, please! From the sister of a severely mentally ill, drug and alcohol addicted, and at times homeless individual, you are enough! You are and always will be loved! Don’t believe the lies that leaving this world will help anyone. Your absence will cause a lifetime of heart-wrenching pain… and there is always another way.

I am baking a cake… and my god… I wish it was for him.

Bring me your hurting, bring me your rejected, bring me your downtrodden… and in his name…. I will give them respite.

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A glimpse into the life of a suicide survivor

tear-drop pic black and white“It was his life if he wanted to end it.” “Why did he leave me?” “He just wasn’t built to withstand the pressures of this world.” “How could he do this to me?” “He didn’t owe anybody anything.” “But didn’t he know just how bad he was going to hurt everyone.” “It was inevitable.” “This didn’t have to happen.”

The thoughts and the grieving process that a suicide survivor goes through is a long and complicated one. And one that never truly reaches a resolution. Like all grief, there is a complex cycle filled with an array of emotions from shock to anger to sadness to contemplative acceptance. But in the case of suicide, the grief cycle is much more complicated because the victim and the cause of death are the same entity. There’s no “Stop drunk drivers” “Cancer sucks” “Addiction is a disease” bandwagon to jump on. There’s no perpetrator to hate or blame or prosecute. There’s no “accident” to chalk up to fate or universal plan. And that is not to minimize the loss of persons via other means but instead to point out the fundamental difference of suicide from any other cause of death. In suicide, the same person you love and miss immensely is the same person who pulled the trigger, tied the noose, swallowed the pills. They did it electively. And it is fucking devastating. There will always be questions. Closure is very hard to find. And as a survivor, once you deal with “you”, then you gotta take on society and their lack of finesse and stigmas surrounding your loved ones passing. See my post on Death etiquette if you don’t want to be that person.

When my brother first died by suicide, after the shock of course, it was the “Why did he leave me?” thoughts that consumed me the most, followed by overwhelming sympathy for the horror that he lived inside his mind.

And then, as I reached my contemplative resolution, I decided that he owed no one. He was single, without children and his life was his own to end, if that’s what he wanted. And I accepted that the battle he fought daily in his mind was not for me to judge and was clearly a miserable one. And I reached an inner peace when I could say to him, “It’s okay. I know you had to go. I know it was too much. It’s okay. I’m okay.”

And then I became a mother. I watched my children grow and develop their own struggles. And like the flip of a switch, my thought-process changed and suddenly, it was all less “okay.” I wondered if my brother ever felt a sense of regret. Does he see how far the rest of us have come? Could he see his nieces and nephews and know what he missed? When he pulled the trigger did he wish he could take it back? The few people that have lived despite their suicide attempt, sometimes speak of feeling instant and overwhelming regret upon facing their death. If he hadn’t been drinking, would the outcome have been the same? Regret, to me, is life’s biggest nightmare. I don’t ever want to live with regret. The idea of my brother carrying the same was painful.

I also no longer viewed my children’s lives completely as their own. I grew them. I birthed them. I nurtured them. And me and my village have invested in them out of endless love. As the suicide survivor that I am, I have told my children, “You don’t ever get to check out. For the love that I brought you into this world with, for the love that your friends and family have carried you through different phases of your life with, for the reason you were put on this planet, you are obligated to continue living, always! I will stop at nothing to get you the help that you need and I will be by your side every step of the way. But you must always choose to live.” But is that fear or logic talking?

Choosing to live isn’t that simple, I know. Mental illness is a dark and complex illness and the stigma that is attached to it, is a heavy one. Even with my history and background in education and nursing, I feel it. I hear the comments, I sense the discomfort, I notice the change in tone of voice when people discuss mental health issues. And it is that stigma, that discomfort, that I believe, is killing people in droves. People with mental illness consistently feel alone and yet I can tell you, on any given night there’s rarely an open bed on the psych unit. As a person who has had to help someone through a crisis, I know I spent hours on the phone to avoid the emergency room. And most psychiatrists in my very populated area have wait lists that are months long. Further more, often the most recommended and more specialized psychiatric practitioners don’t accept insurance. But there are options, there are always options!

According to the CDC deaths by suicide are up 25% since 1999. The numbers were making a steady decline after the Great Depression but started to increase in 1986 and in the last 10 years it has skyrocketed. The statistics start at age 10. Girls aged 10-14 and males aged 45-64 show the sharpest increase. Firearms is most common cause of death. Suicide is now the 10th leading cause of death in the U.S. The US! The land of opportunity! The land of the free! The land of milk and honey! Why when we have so much are we choosing to end it all? Whether the decision was impulsive or well thought-out and planned for years, persons who choose to die by suicide almost always feel hopeless. Why are we so hopeless?

Maybe it’s social pressures. Maybe it’s a failing mental health system. Maybe it’s unrealistic cultural expectations. Maybe it’s guns. Maybe it’s social media. I don’t know.

What I do know is that it has to stop. And the “pull yourself up by your boot straps” mentality doesn’t work! We need real solutions. We need real change.

While I understand the risks associated with medications and I don’t believe any pill is an easy fix … correcting chemical imbalances saves people’s lives. And when there isn’t a chronic and biological cause for depression or a mood disorder, sometimes medicine, combined with therapy, helps to bid the time to allow someone to get over a traumatic life event. When people publicly shun medication, they contribute to the stigma.

And if you’re not ready for medication, what is the problem with therapy? Why do people avoid seeing a therapist? I mean, if I had a nickel for every time someone said “Oh we don’t need that!”… “I mean, we’re not there yet.”… or “Oh no, it’s not That bad!”,  I’d be a millionare! What are you waiting for!? A crisis?! Are you too good to talk to somebody? An expert in the field? And what does that make me? A headcase? An over-reactor? No, it makes me a sister, a daughter, a mother, who refuses to allow history to repeat itself, who refuses to wait until it’s too late.

My brother’s suicide, my uncle’s suicide and the many suicides I have now been personally made aware of since my brother’s passing have forever changed me. I will never be okay with it. I will never get over it. I will forever know the feeling of loss and regret. And I will forever have questions. But I will never ignore a warning sign. Never will I pass up an opportunity for assistance. Never will I rationalize that “We’re not there yet” or assume that we are better than anybody or immune to tragedy. Never will a person’s mental heath issues be a source of gossip or judgment in my presence. Never will I pass up an opportunity for someone who needs to talk. Further more, I will work to never minimize someone else’s struggle and always try to be kind.

Because where someone else sees a “weird kid,” I see my big brother. The teenager  “looking for attention” could easily be my own. Who the world writes off as “crazy,” I know, was once a precious little baby that someone loved. And the old man who has “lived a good life” is my father whom I still so desperately need. My family was The family. None of these statistics are just numbers. They are lives, lives who are loved, whether they accept that or not.

I hope you join me in my work.

And to this note, if you want to help, if you want to make a difference, here are a few small changes that we can make to help to change the societal influences of suicide. In addition, consider donating or participating in Out of the Darkness, a walk and movement to help end suicide.

  • Stop saying “committed suicide”, instead use “death/died by suicide”. It helps to remove victim blame. Save “committed” for crimes against society.
  • Don’t use the terms “successful” or “unsuccessful” when referencing a suicide attempt. Suicide is never a success.
  • Don’t share media posts that announce in the headline that the cause of death was suicide. This perpetuates normalcy as well as creates a hype that statistically leads to imitative behaviors. Teens especially, may look for attention in suicide attempts. Attention called to the act or to the details of suicide can encourage risky behaviors that could lead to suicide.
  • Focus on the victims or in the case of suicide, the suicide survivors (the loved ones affected by the suicide). The same way school shootings can be sensationalized by the media (and by us) and then copycatted, suicide too, can lead to imitative behaviors. This is decreased when the focus is put on the pain of the surviving family members/friends instead of the cause of death.  
  • In moments of exasperation never say “Well just do it then” instead make a phone call and get help.
  • Don’t refer to it as “an easy way out”-that can be attractive to those persons who are contemplating suicide.
  • Take every comment about wanting to die, no matter how trivial or off-handed or passive aggressive it seems, seriously!

Lastly, don’t take life for granted and don’t ever think suicide won’t affect you. Regret is life’s biggest nightmare, save yourself and those you love by remaining vigilant. And always choose love. I pray you never know the pain of a loved one electing to end their life and I pray that you yourself never feel so hopeless that you consider such an end. But if you do, I am always, always here and I will always maintain your confidence and promise to lend an ear without judgement. You are not alone.

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Worth living for…. My gratitude list and a response to the play “Every Brilliant Thing,” an essential conversation on suicide awareness and mental health

writing-1317009-640x480I recently attended a performance of the play, “Every Brilliant Thing,” written by Duncan MacMillan and Johnny Donahoe and performed by Alexander Strain. The play is and further yields a worthy conversation on suicide awareness and the importance of an individual’s mental health. And in the play, the conversation is held in the form of a one man cast who begins as a 7-year-old boy who is trying to understand and navigate the suicide attempt of his mother. The primary way he does this and the ongoing theme of the play is a gratitude list, or as he so britishly calls it, a “A list of Every Brilliant Thing”. And he leaves it on the pillow of his mother when she returns home as a reminder of all the things worth living for.

The list grows and unfolds over a lifetime and using light-hearted humor and audience participation, it reminds us of the many good things in life. It also brings to light, the fact that when our lives are going well and we have much to live for, the list grows quickly and easily. But on our difficult days, on the days when life has handed you a royally shitty hand, it can be a painful and nearly impossible task to think of things to be grateful for … or even to look at the list at all, for that matter.

Through this presentation, as a model for life itself, we are given the therapeutic task of replacing sorrow with gratitude, a worthy and effective exercise. And yet the play makes it clear, that this isn’t a cure for mental illness. Gratitude lists help us to establish a more positive outlook on life. They create a healthier, more uplifting viewpoint on the everyday, which improves our quality of life and self-satisfaction; but they don’t usually save lives and they certainly don’t cure chemical imbalances. It explains how grief and our attempts to process it, change as we age. And it makes the feelings that suicide survivors have, relatable. The guilt, the frustration and the fear of inheriting the same illness are all very real feelings for those affected by suicide; and it is self-affirming when someone else echoes the things you speak of only in your mind.

But the most important aspect of the play entirely, in my opinion, is the conversation that the play both is and creates. The conversation that mental illness is real and serious and that it deserves immediate and respectful attention. And yet in order to be effective, we must create some sense of normalcy and a comfortable place for people to come. In order to treat the illness, we must first end the stigma. Suicide is the 10th leading cause of death in the U.S and 1:5 Americans and Canadians suffer from some form of mental illness. The majority, not the minority, of people have been affected by suicide and the cascade of mental illness. And yet, we sabotage our own needs by labeling people, distancing ourselves, avoiding the topic or becoming uncomfortably solemn and unrelatable when we talk to those who are experiencing symptoms. It’s almost like we’re afraid of getting their “cooties.” Or perhaps we’re afraid of getting hurt or feeling responsible if things go awry. And yet, the name calling, ostracization and lack of relatability is exactly what perpetuates bad outcomes.

While there is still much work to do, and my experience is biased by living in a progressive part of the country, I do believe that we have made great strides in ending the hurtful exclusion and name calling of homosexuals and mentally retarded individuals. My children have grown to accept these people as they are and are blessed to have never heard the word “Fag” or “Retard” from their peers. And yet they know very well the term “Psycho.” And even worse, they know that quiet and cold feeling that comes when someone “has problems.”

As a medical professional and an advocate for mental health services, I can assure you of the suffocating nature that that stigma carries. Rarely to my face … but most often in small conversation, when the people talking don’t know my story, that’s when I hear it. That’s when, like my children, I feel it. The tone gets quiet and serious and suddenly, everyone involved in the gossip is “better” than the subject they are referring to.

And I do believe that the root of this reaction is out of self-preservation and not of mal intent. It is however, just as damaging. When people don’t have full regulatory control over their emotions or psyche, it makes people feel uncomfortable and afraid. And those people usually respond in 1 of 3 ways.

  1. They isolate that person. They stop hanging out with them, stop answering their texts and avoid them. They might be afraid of being manipulated by them or maybe they are just uncomfortable around them now. Maybe they don’t know what to say. It’s an immature response, but a common one. When one is afraid, they often run away. Still the affected person is left alone and learns by default not to confide in others. And because of this rejection, by default, the isolated person is labeled as an “outsider” or “different”.
  2. An even more immature response to feeling uncomfortable is to laugh and poke fun. This is not rooted in self-preservation. It is simply mean-spirited. And it happens all the time. The homeless guy that’s mumbling nonsense, the kid that comes to school dressed bizarrely or the jokes about voices in your head … all seem like viable subjects of seemingly innocent banter and yet to the victim and their families, it’s another assault. And even more so, to the bystander, whom you think is perfectly “normal”, those jokes are another rejection, another statement that “if you tell your secret, we won’t accept you”.
  3. And lastly, when they don’t ostracize or bully and tease, they judge. They judge them for “not really having a chemical imbalance,” without having any knowledge of that person’s medical records. They accuse them of “doing it for attention,” without ever wondering why. They judge them for “putting chemicals into their bodies”, for not being strong enough to handle life, for being dramatic, for always being “so negative”, for being “too lazy to get out of bed” or “too ____” … whatever.

So this week’s post is both a hand extended and a plea to all of those who have ended relationships because of a diagnosis … Who have refused to acknowledge or talk about the mental health of a person to their face and instead gossiped behind their back … To those who have labeled someone as “crazy,” a “head-case”, or a “nut job,” knowing full-well there was an underlying condition responsible for that person’s actions … For those who believe that simply “picking yourself up by your bootstraps” is an effective treatment … and for those who publicly demean mental health services in the form of therapy or medication … You are killing us!

Please educated yourself. Please try to understand someone else’s perspective. Please be compassionate and kind and patient. Please be a safe place. And if you can’t, at least shut up and give them a number to call. The worst place to be, is alone. And people who suffer from mental illness or have loved ones who are suffering, always feel alone. Please help me to change that!

Mental illness is so frustrating. And those affected can be incredibly draining and manipulative. And confronting mental illness most certainly can induce a grief response. But just the way we have changed the way we talk about mental retardation and homosexuality, a change in the way we respond to mental illness is also greatly warranted. It is not a new problem. It’s not a rich or a poor problem. It’s not an educated versus non-educated problem. It’s not a race problem. It’s not a strong versus weak problem. It is everyone’s problem. And people’s lives literally depend on it.

I am the mother, sister, daughter, granddaughter and niece of those affected by mental illness and there is not a single documented diagnosis in my family. Stigma and self-righteousness prevented diagnosis and treatment in our past. It led to many tortured lives and two untimely deaths in my beautiful, “normal”, middle-class, white, educated, god-loving, family.

That shit is changing with me.

So in the spirit of the play, I’ll end with my own “Brilliant List” and I’ll encourage you all to do the same, to seek out goodness and positivity. The National Alliance for Mental Illness reports that when you actively seek out ‘reasons to be thankful’ for 21 days, you will start to involuntarily think more positively. We could all use that. And then I’ll remind you that sometimes that list won’t be enough. And there are people and services that can help. Please let them help.

My favorite line in the play is :

“Life may not ever become Brilliant but it does get better. It always gets better.”

Amanda’s Brilliant List

  1. Hearing my children say, “Good job Mommy”
  2. Letting my husband love me in all his glorious ways
  3. Dancing in the kitchen
  4. Belting out Disney tunes with my 2-year-old niece
  5. Dark chocolate and red wine paired together, in the evening, when the house is quiet
  6. Finishing a photo book and reminiscing on that trip
  7. Planning a new road trip and anticipating the discovery of a new place
  8. The first unseasonably warm day of the year
  9. Talk therapy with my best friend, just the two of us … and wine
  10. Being assigned the patient that no one else wanted, and then connecting with her
  11. Having an opportunity to sleep in and actually being able to sleep
  12. Cooking delicious food with my siblings – we are like top chefs…well one is anyway!
  13. Going to a rock concert with my Dad and never sitting down
  14. Getting rid of old things and making space in the house without feeling wasteful
  15. Using up all the odds and ends in the fridge and creating something delicious with them
  16. Pedicures, with a really good leg massage
  17. A blog post that blows up, in a good way 🙂
  18. The smell and feel of a fresh haircut and highlights, good-bye grays and split ends
  19. Long conversation with deep thinkers over good wine
  20. Knowing that I’ve helped someone
  21. People who understand
  22. Extra time when I need it
  23. Thematic parties
  24. Outdoor summer family parties that start with food, lead to dancing and end with quiet conversation and star-gazing late into the night
  25. Feeling like despite all my failures and heartache, somewhere, somehow, I’m doing something right and maybe I’ll leave this world just a little better than I found it.

 

For those who need a phone number for help: 1-800-273-TALK, 1-800-SUICIDE, or text NAMI or TALK to 741-741