Worth living for…. My gratitude list and a response to the play “Every Brilliant Thing,” an essential conversation on suicide awareness and mental health

writing-1317009-640x480I recently attended a performance of the play, “Every Brilliant Thing,” written by Duncan MacMillan and Johnny Donahoe and performed by Alexander Strain. The play is and further yields a worthy conversation on suicide awareness and the importance of an individual’s mental health. And in the play, the conversation is held in the form of a one man cast who begins as a 7-year-old boy who is trying to understand and navigate the suicide attempt of his mother. The primary way he does this and the ongoing theme of the play is a gratitude list, or as he so britishly calls it, a “A list of Every Brilliant Thing”. And he leaves it on the pillow of his mother when she returns home as a reminder of all the things worth living for.

The list grows and unfolds over a lifetime and using light-hearted humor and audience participation, it reminds us of the many good things in life. It also brings to light, the fact that when our lives are going well and we have much to live for, the list grows quickly and easily. But on our difficult days, on the days when life has handed you a royally shitty hand, it can be a painful and nearly impossible task to think of things to be grateful for … or even to look at the list at all, for that matter.

Through this presentation, as a model for life itself, we are given the therapeutic task of replacing sorrow with gratitude, a worthy and effective exercise. And yet the play makes it clear, that this isn’t a cure for mental illness. Gratitude lists help us to establish a more positive outlook on life. They create a healthier, more uplifting viewpoint on the everyday, which improves our quality of life and self-satisfaction; but they don’t usually save lives and they certainly don’t cure chemical imbalances. It explains how grief and our attempts to process it, change as we age. And it makes the feelings that suicide survivors have, relatable. The guilt, the frustration and the fear of inheriting the same illness are all very real feelings for those affected by suicide; and it is self-affirming when someone else echoes the things you speak of only in your mind.

But the most important aspect of the play entirely, in my opinion, is the conversation that the play both is and creates. The conversation that mental illness is real and serious and that it deserves immediate and respectful attention. And yet in order to be effective, we must create some sense of normalcy and a comfortable place for people to come. In order to treat the illness, we must first end the stigma. Suicide is the 10th leading cause of death in the U.S and 1:5 Americans and Canadians suffer from some form of mental illness. The majority, not the minority, of people have been affected by suicide and the cascade of mental illness. And yet, we sabotage our own needs by labeling people, distancing ourselves, avoiding the topic or becoming uncomfortably solemn and unrelatable when we talk to those who are experiencing symptoms. It’s almost like we’re afraid of getting their “cooties.” Or perhaps we’re afraid of getting hurt or feeling responsible if things go awry. And yet, the name calling, ostracization and lack of relatability is exactly what perpetuates bad outcomes.

While there is still much work to do, and my experience is biased by living in a progressive part of the country, I do believe that we have made great strides in ending the hurtful exclusion and name calling of homosexuals and mentally retarded individuals. My children have grown to accept these people as they are and are blessed to have never heard the word “Fag” or “Retard” from their peers. And yet they know very well the term “Psycho.” And even worse, they know that quiet and cold feeling that comes when someone “has problems.”

As a medical professional and an advocate for mental health services, I can assure you of the suffocating nature that that stigma carries. Rarely to my face … but most often in small conversation, when the people talking don’t know my story, that’s when I hear it. That’s when, like my children, I feel it. The tone gets quiet and serious and suddenly, everyone involved in the gossip is “better” than the subject they are referring to.

And I do believe that the root of this reaction is out of self-preservation and not of mal intent. It is however, just as damaging. When people don’t have full regulatory control over their emotions or psyche, it makes people feel uncomfortable and afraid. And those people usually respond in 1 of 3 ways.

  1. They isolate that person. They stop hanging out with them, stop answering their texts and avoid them. They might be afraid of being manipulated by them or maybe they are just uncomfortable around them now. Maybe they don’t know what to say. It’s an immature response, but a common one. When one is afraid, they often run away. Still the affected person is left alone and learns by default not to confide in others. And because of this rejection, by default, the isolated person is labeled as an “outsider” or “different”.
  2. An even more immature response to feeling uncomfortable is to laugh and poke fun. This is not rooted in self-preservation. It is simply mean-spirited. And it happens all the time. The homeless guy that’s mumbling nonsense, the kid that comes to school dressed bizarrely or the jokes about voices in your head … all seem like viable subjects of seemingly innocent banter and yet to the victim and their families, it’s another assault. And even more so, to the bystander, whom you think is perfectly “normal”, those jokes are another rejection, another statement that “if you tell your secret, we won’t accept you”.
  3. And lastly, when they don’t ostracize or bully and tease, they judge. They judge them for “not really having a chemical imbalance,” without having any knowledge of that person’s medical records. They accuse them of “doing it for attention,” without ever wondering why. They judge them for “putting chemicals into their bodies”, for not being strong enough to handle life, for being dramatic, for always being “so negative”, for being “too lazy to get out of bed” or “too ____” … whatever.

So this week’s post is both a hand extended and a plea to all of those who have ended relationships because of a diagnosis … Who have refused to acknowledge or talk about the mental health of a person to their face and instead gossiped behind their back … To those who have labeled someone as “crazy,” a “head-case”, or a “nut job,” knowing full-well there was an underlying condition responsible for that person’s actions … For those who believe that simply “picking yourself up by your bootstraps” is an effective treatment … and for those who publicly demean mental health services in the form of therapy or medication … You are killing us!

Please educated yourself. Please try to understand someone else’s perspective. Please be compassionate and kind and patient. Please be a safe place. And if you can’t, at least shut up and give them a number to call. The worst place to be, is alone. And people who suffer from mental illness or have loved ones who are suffering, always feel alone. Please help me to change that!

Mental illness is so frustrating. And those affected can be incredibly draining and manipulative. And confronting mental illness most certainly can induce a grief response. But just the way we have changed the way we talk about mental retardation and homosexuality, a change in the way we respond to mental illness is also greatly warranted. It is not a new problem. It’s not a rich or a poor problem. It’s not an educated versus non-educated problem. It’s not a race problem. It’s not a strong versus weak problem. It is everyone’s problem. And people’s lives literally depend on it.

I am the mother, sister, daughter, granddaughter and niece of those affected by mental illness and there is not a single documented diagnosis in my family. Stigma and self-righteousness prevented diagnosis and treatment in our past. It led to many tortured lives and two untimely deaths in my beautiful, “normal”, middle-class, white, educated, god-loving, family.

That shit is changing with me.

So in the spirit of the play, I’ll end with my own “Brilliant List” and I’ll encourage you all to do the same, to seek out goodness and positivity. The National Alliance for Mental Illness reports that when you actively seek out ‘reasons to be thankful’ for 21 days, you will start to involuntarily think more positively. We could all use that. And then I’ll remind you that sometimes that list won’t be enough. And there are people and services that can help. Please let them help.

My favorite line in the play is :

“Life may not ever become Brilliant but it does get better. It always gets better.”

Amanda’s Brilliant List

  1. Hearing my children say, “Good job Mommy”
  2. Letting my husband love me in all his glorious ways
  3. Dancing in the kitchen
  4. Belting out Disney tunes with my 2-year-old niece
  5. Dark chocolate and red wine paired together, in the evening, when the house is quiet
  6. Finishing a photo book and reminiscing on that trip
  7. Planning a new road trip and anticipating the discovery of a new place
  8. The first unseasonably warm day of the year
  9. Talk therapy with my best friend, just the two of us … and wine
  10. Being assigned the patient that no one else wanted, and then connecting with her
  11. Having an opportunity to sleep in and actually being able to sleep
  12. Cooking delicious food with my siblings – we are like top chefs…well one is anyway!
  13. Going to a rock concert with my Dad and never sitting down
  14. Getting rid of old things and making space in the house without feeling wasteful
  15. Using up all the odds and ends in the fridge and creating something delicious with them
  16. Pedicures, with a really good leg massage
  17. A blog post that blows up, in a good way 🙂
  18. The smell and feel of a fresh haircut and highlights, good-bye grays and split ends
  19. Long conversation with deep thinkers over good wine
  20. Knowing that I’ve helped someone
  21. People who understand
  22. Extra time when I need it
  23. Thematic parties
  24. Outdoor summer family parties that start with food, lead to dancing and end with quiet conversation and star-gazing late into the night
  25. Feeling like despite all my failures and heartache, somewhere, somehow, I’m doing something right and maybe I’ll leave this world just a little better than I found it.

 

For those who need a phone number for help: 1-800-273-TALK, 1-800-SUICIDE, or text NAMI or TALK to 741-741