ADHD sucks. Like I mean, it really sucks. While Iām sure I have a mild case of it myself and Iāve learned how to cope with itā¦I never fully appreciated the struggle that is ADHD until I had kids with the diagnosis.
Of all the diagnoses there are in the world, ADHD has got to be on the incredibly low end of the spectrum. I mean thereās cancer, thereās severe autism, cerebral palsy, mental illnessā¦there are legit syndromes and conditions that are debilitating and life threatening! Who cares about a little attention and focus disorder?
I guess thatās what I always thought and why I never lent it much respect. Get over yourself and the fact that your kidās not āperfectā and deal with it. Ohhhā¦.so sorry for you that you have to be involved in their schoolworkā¦.poor you!
Let me tell youā¦Iām a pretty tough cookie and I have shed more tears over my childrenās struggles with ADHD than just about any of my other struggles. Why? Mostly because theyāre my babies and anything that causes them angst causes me double. But also because I had no clue just how hard the journey was until I walked it.
Let me paint you the picture:
Itās youāre first baby, going to school for the first time. You canāt wait to see what adventures she takes and the new things sheāll learn. Youāre welcoming the break during the day and excited for her to meet new friends. You send her off to school with her new shoes and back-pack aaaaaand ā¦.she ends up hating school. She cries before she goes and she cries when she comes home. When you ask her how her day was her report is either a play-by-play of everyone who walked past the classroom door or a complaint that it was ātoo hardā or ātoo longā. Homework is a chore and once she reaches upper elementary it takes her hours. You talk to other parents and they seem puzzled by your experience. āOh really, my kids love school! They feel sad when they miss it!ā āFour hours for homework!?!? Oh my! No, little Suzy never spends more than 30 minutes!ā Parent teacher conferences become something you dread because your kid is never keeping up. You are told that they are a ājoy to have in classā¦butā. Thereās always a ābutā. At report card time Facebook is flooded with honor roll and straight A postsā¦and youāre still waiting for your turn. While your friends report their kids go up to their rooms and independently do their homework, you sit at the dining room table with yours for hours. Homework is never done before dinner time which means answering questions and redirecting in between stirring the pasta and chopping the veggies. Your evenings are no longer yours and day hours are speckled with sending e-mails to teachers about missed assignments and falling grades. While you once longed for the days you could get a break by sending your kids to school, you now dread that institution as much as the kids do.
ADHD robs you of your time and sanity, but thatās not the worst part. The worst part is that you have to see your childrenās tears hit their notebook paper and watch their frustration, every day. You have to see their faces red with embarrassment when they forgot their homeworkā¦again. You have to know that every so many days they go without eating because they forgot their lunch and they just donāt want to call you to bring it, again. You hear them say, āNo Iām notā when you tell them that they are smart and look into their disappointed eyes when they missed honor rollā¦..again. ADHD it seems, is an endless stream of disappointing āagainsā. You have to know that despite your best efforts and the practices youāve put into place to help them succeed, you still have to let them learn the hard way in order to find their most effective coping mechanisms. That constant stream of trials and errors is painful to watch. Itās a disorder for which medication is controversial and you canāt fix it.
Iāve spent an hour trying to convince my child to stop rolling around on the floor and sit up at the table to do their homework. And Iāve broken them by demanding that they āKnock it off, sit up and get it done or else!ā Iāve given them the simplest directions of writing just one sentence and returned 20 minutes later to find an empty page. I have broken down a one page reading assignment into sentence fragments (Think about that!) to make it easier to understand. Iāve spent 8 hours trying to help them write one paragraph and days trying to re-organize their rooms. Iāve bought the entire school supply list 5x over because everything kept āgetting lostā and Iāve restocked the nurses āsnack cabinetā from all of the times my children have borrowed from it when they forgot their lunch. Iāve never had the luxury of missing a parent-teacher conference and Iāve got every teacherās e-mail memorized.
But Iāve also watched my child earn the honor roll after 13 worthy but failed attempts. Thatās a celebration! Iāve seen the relief of finishing a day-long assignment wash over their face. And Iāve heard from parents and teachers alike that I have āreally wonderful childrenā. My children have had the opportunity to learn from a young age that their disability isnāt an excuse not to succeed. They are learning to work hard now.
I know that there are so many, much worse conditions that my children could be plagued with. They are healthy. They are kind. They are great kids! I wouldnāt trade them for every last dollar on the planet and I love them more anything in this world. They are my everything!
I am a stronger person because of it and one day I might be able to use this journey to help othersā¦. But ADHD still sucks. Just because itās not the worst thing that could happen, doesnāt make it easy. I have to deal with it but Iām allowed not to like it. 5 years ago we got our first diagnosis and many days Iām still overwhelmed. I am a strong person and I still privately cry when I see them struggle. I am proactive and work to get them accommodations and help them learn coping skills but I still ache for school and organization to be easier for them. And when it became clear that my second child needed to be evaluated tooā¦I cried even more. I really really didnāt want to walk down that road again. Because itās a hard road.
But itās our roadā¦so Iāll walk it with themā¦hand in handā¦with a sticky note reminder on their binder and an extra pencil in my pocket. And weāll be okā¦. crappy olā ADHD and all.
Loved your article, Amanda! Such a troublesome topic and hardship for many families.